Overview
What is hemophilia B
Hemophilia is a hereditary, lifelong blood disorder in which the blood clots more slowly than normal. Normally, when an injury occurs that causes bleeding, our bodies respond by clotting (coagulating) the blood so the bleeding slows and eventually stops. There are at least 13 different proteins called “clotting Factors.” People with hemophilia have a deficiency of a blood protein called clotting Factor, and their blood does not clot fast enough. A deficiency of clotting Factor IX (nine) is called hemophilia B.
About 2% - 3% of people with hemophilia B will develop an inhibitor in which the immune system recognizes Factor IX (9) proteins as a foreign invader. The immune system creates antibodies against Factor IX; therefore, the product used to treat hemophilia B may need to be changed, or pre-medications to prevent symptoms and/or more Factor needs to be infused in order to overcome the body’s immune response that neutralizes the infused Factor. Some people have very high levels of inhibitors, so other products need to be infused in order to allow clotting functions to occur.
For more information, visit our website dedicated to bleeding disorders at www.hemophilia.com.
Questions regarding your hemophilia B therapy
You can reach the Accredo bleeding disorder care team, anytime, day or night, seven days a week by phone or online.
24-hour Customer Service Center
Symptoms
Most forms of hemophilia are passed through families (inherited) or result from problems with the genes (genetic material) that instruct the body to make the proteins that help blood to form clots. Locations of common bleeds are joints, muscles and the mouth. Knotty bruises are also a frequent symptom.
For more information, visit our website dedicated to bleeding disorders at www.hemophilia.com.
Medications
The following specialty medications are available at Accredo, a specialty pharmacy for hemophilia B.
Financing Your Care
Financial assistance coordination may be available to help with your medication costs, including manufacturer and community programs. Accredo representatives are available to help find a program that may work for you. Contact your Customer Experience Specialist at 866-712-5200.
Financial Guidance
Life-saving specialty medication can be expensive. Learn how the Accredo teams help individuals find ways to afford the medication they need to survive in this video.
Meet the Team
Accredo’s bleeding disorder care team is dedicated to serving you, and we understand the complexity of your condition. Our specialty-trained clinicians are available 24 hours a day, seven days a week to answer any questions.
Why We Do It
Accredo supports patients with chronic and complex conditions and helps them live their best life. Watch our video to learn why we do what we do for our patients.