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Patients

Accredo provides every patient starting on a therapy with a Welcome Packet. This packet provides patients with Accredo service along with the appropriate contact numbers to access our clinical staff and patient care coordinators.

There are many organizations that support research and advocacy for your condition. See below for a few of those organizations.

Resources by Condition

National Association of Chain Drug Stores
Consumer information including prescription medication education, medication tips, Women’s Health, Asthma Action America, & links.

National Heart, Lung, & Blood Institute (NHBLI)
Offers current health news, health related information, an overview of dept services & contacts.

Vanderbilt Children’s Hospital
Family resources for children with asthma, links with age-specific content, & list of informational books, videos, & CD-Roms for children and parents.

allaboutbleeding.com
Education, guidance, & support for people who have or suspect they have von Willebrand disease, providing information resources, community support, & a resource center.

American Association of Blood Banks
International organization of blood banks, transfusion services, & individual members engaged in blood banking & transfusion, “TRANSFUSION Journal,” information on CJD & transfusion-transmitted diseases.

American Society of Hematology 
Association representing scientists working with blood & blood diseases, international outreach, patient links, & press releases.

Bloodline
Resource for hematology education provides news on blood disease and anemia, access to discussion forums & full-text medical research journals, hematology links, & news.

Canadian Hemophilia Society (CHS)
Information & research on bleeding disorders, CHS Newsletter, & Hepatitis C Information booklet.

Centers for Disease Control & Prevention (CDC)
1-888-4HEPCDC (443-7232) 

24-Hour Toll-free
(8 A.M. to 4:40 P.M. EST)
http://www.cdc.gov/ncidod/diseases/hepatitis/index.htm
Studies, statistics, & links related to Hepatitis, recommendations for prevention and for those infected, FAQ & fact sheet for HCV.

Factor Foundation of America
Comprehensive hemophilia health management, Factor Forum, newsletters, & resources.

South American Haemophilia Foundation
Medical news, tips for staying fit & healthy, treatment guidelines, & information on other bleeding disorders.

National Heart, Lung, & Blood Institute (NHBLI)
Offers current health news, press releases, health related information, an overview of dept services & contacts, clinical trials, & links.

National Hemophilia Foundation
American advocacy & support organization provides symptom & treatment data to those w/ blood-clotting disorders, medical & blood safety news, publications, newsletters, & links.

National Home Infusion Association
Information, networking, referrals, & resources on home & alternative site infusion (IV) therapy for patients & professionals, FAQs, & links.

Biotechnology Industry Organization (BIO)
Information on prescription coverage & reimbursement, research, media center, & links to patient groups.

American Society of Gene Therapy
Information on new developments in gene therapy, research, news releases, & scientific journal – “Molecular Therapy.”

Human Genome Project Information
Information on gene testing, genetic disease information, overview of genomics & medicine, & educational resources.

National Human Genome Research Institute
Advancing human health through genetic research, includes health resources, FAQs, genetic & rare disease information center, multimedia glossary, & information & links for specific genetic disorders (breast or skin cancer, e.g.).

AIDSinfo 
US Department of Health & Human Services

Central resource for federally-approved treatment guidelines for HIV/AIDS.

Centers for Disease Control & Prevention
HIV/AIDS Prevention

Facts & statistics, addresses hoaxes & rumors, information on HIV/AIDS drugs and treatments, and current treatment guidelines.

CDC National Prevention Information Network 
A Service of the National Center for HIV, STD, and TB Prevention

Search for organizations that may provide case management, counseling, education & outreach, health care, housing assistance, legal counseling, etc.

Health Resources and Services Administration (HRSA)
US Department of Health & Human Services

Key Program Areas include: HIV/AIDS Services provided through the Ryan White CARE Act which helps provide health care for people with HIV disease who are uninsured or underinsured with low incomes.

HIV ReSources, Inc. – Nutritional Resources
Nutritional Support for persons with HIV/AIDS.

National Institute of Allergy and Infectious Diseases (NIAID)
Division of Acquired Immunodeficiency Syndrome

Resources for patients, physicians, & investigators; publications & meeting summaries; NIAID Funded Research, HIV Vaccines, HIV/AIDS Treatment.

National Library of Medicine – Specialized Information Services
Information on HIV/AIDS clinical trials, drugs, treatment, consumer health, web links, journal articles, books, audiovisuals, etc.

Project Inform
A non-profit agency based in San Francisco providing information on diagnosis & treatment, advocacy for research & funding policies & inspiration of hope over despair.

Advanced Reproductive Care
Network of infertility specialists providing information, research, financial services & links.

The American College of Obstetricians & Gynecologists
Non-profit organization providing patient education, news releases, & physician locator.

Baby Center
Articles on causes of & treatments for infertility, coping w/ a fertility problem, & considering other options; also provides a free preconception newsletter w/ advice from experts & support from others trying to conceive.

Fertile Thoughts
Information on emotional aspects of infertility, support chatrooms, infertility resources, FAQs, & myths & facts.

Hannah’s Prayer Ministries
Non-profit organization offering Christian support for fertility challenges including infertility or the death of a baby at any time from conception through early infancy; also offers support groups, interactive message boards, chat rooms, monthly newsletter, & reproductive resources.

Internet Health Resources
Provides extensive infertility information including IVF, infertility clinics, and donor egg/ surrogacy programs.

The International Council on Infertility Information Dissemination
Non-profit organization providing support & information, reproductive news, essays, & articles.

National Women’s Health Resource Center
Non-profit organization providing access to Health Center A-Z, current news, a comprehensive directory of women-friendly health services & organizations, treatments, prevention, Facts to Know, & Questions to Ask.

The National Women’s Health Information Center 
The Office of Women’s Health
US Dept of Health & Human Services

Health information for women including journal, links, news, overview, treatments, & information on assisted reproductive technology (ART).

International Multiple Sclerosis Support Foundation 
Non-profit organization providing MS information, articles by physicians, medications & symptoms, chatroom, resources, & support.

Multiple Sclerosis Foundation
Non-profit MS information center including multimedia library, forums, support group directories, FAQs, treatment options, complementary & alternative medicine (CAM), news, & research.

National Institute of Neurological Disorders and Stroke (NINDS)
Latest findings of research & clinical trial information on MS.

National Multiple Sclerosis Society
Comprehensive site provides information & links to medical facts, publications, local resources, research updates, & advocacy.

American Cancer Society
Extensive network of services & organizations fighting cancer by providing education & support, w/ resources for survivors, family, friends, & professionals, medical updates, treatment options, & resources for coping.

Colon Cancer Alliance 
Support & information for people touched by colorectal cancer including, financial issues, clinical trials, downloadable documents, chatroom, & treatment news.

Kidney Cancer Association
Non-profit charity providing information, physician referrals, advocacy, & offering support w/ survivor links, therapies, & self-care.

Leukemia & Lymphoma Society
Details disease, local chapters, events, statistics, & research; also includes media kits, educational material, & links to other resources.

National Brain Tumor Foundation (NBTF)
Informative reports on new treatments & clinical trials, with stories from survivors & interviews with leading physicians, information on surviving & coping, NBTF Newsletter, publications, & a treatment center database.

National Breast Cancer Coalition
Non-profit grassroots advocacy organization providing information & a Guide to Quality Breast Cancer Care.

National Cancer Institute (NCI)
Gateway for information on cancer for patients, features research updates, treatment, complementary/alternative medicine, side effects, coping, & support & resources.

National Human Genome Research Institute
Advancing human health through genetic research, includes health resources, FAQs, genetic & rare disease information center, multimedia glossary, & information & links for specific genetic disorders (breast or skin cancer, e.g.).

Vanderbilt-Ingram Cancer Center 
Information on clinical trials, on-line cancer drug manual, patient support services & information on childhood cancer.

National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK)
National Institutes of Health

Health information & research findings on the diseases of internal medicine.

American Association of Clinical Endocrinologists (AACE)
Current endocrine-related issues & informational publications.

The Hormone Foundation
Resource for prevention, treatments, and cures for hormone-related diseases, patient outreach & education.

The Endocrine Society
Online journals, physician referrals, information on advocacy, & patient fact sheet and links.

The Endocrine Society Journals Online
Research journals.

The Magic Foundation
Non-profit organization providing support, education, and assistance to families and adults, services include a quarterly newsletter – “The MAGIC Touch” and a national Pen-pal program.

Creutzfeldt-Jakob Disease Foundation, INC
Non-profit organization providing an overview of CJD, news, & links; also a provides a message board for questions and opinions.

Pituitary Network Association
Non-profit patient advocacy organization providing information on the treatment and cure of pituitary disorders, includes medical resources, glossary of terms, FAQ’s & links.

Acromegaly.org
A Satellite Site of the Pituitary Network Association
Brochure – “Living w/ Acromegaly”, physician referrals, & treatment options.

National Institute of Arthritis & Musculoskeletal & Skin Diseases
National Institute of Health

Health information for patients, research, training, news updates, & outreach programs.
 

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